Alan Simpson, Professor of Collaborative Mental Health Nursing and leads the Centre for Mental Health Research at City, University of London, United Kingdom
Alan has a special interest in service user involvement and co-production; he and his team recently completed two funded cross-national studies of recovery-focused mental health care planning in community and inpatient settings. Both studies had a high level of co-production with people with lived experience of mental health problems and service use involved as co-investigators, expert advisors and service user researchers. Alan is currently co-investigator on a large study of peer support (‘ENRICH’), which builds on his earlier pilot trial of peer support for people discharged from hospital. Other interests include improving the physical and mental health of people with comorbid conditions and working with other disciplines to enable this to be successful.
Knud Kristensen, President, Danish Association for Mental Health – SIND, Denmark
Knud Kristensen is a powerful spokesman for people with mental illness and their relatives. Are there any problems in psychiatry, he is quickly on the path with concrete suggestions for solutions. Since 2009, Knud Kristensen has been Chairman of the SIND National Association for Mental Health.
At the festival he will talk about: Involvement and empowerment of carers – from blaming to recognition
This is an appetizer of the keynote:
In SIND we perceive the treatment of people with a mental disorder as a shared responsibility/a joint challenge for the patient, the relatives and the professionals.
If the three parties succeed in working well together, the patient is recovering faster and more compared with situations where the relationship between two or all three of the parties is not working.
In Denmark, in recent times, we have experienced three historic phases of the view on the relatives:
The first phase was the one in which the relatives were considered to be guilty if one in the family was affected by a mental disorder.
The second phase was the one in which it was known that the relatives were not guilty, but where the professionals concentrated their efforts on the patient. Someone else (such as SIND) had to take care of the relatives.
The third phase is the one in which it is widely acknowledged that relatives can be an invaluable resource in the effort - especially if they are helped and supported in the struggle to cope with the role of being carers.
As a specific example of how to support the relatives, I would like to mention OPUS (a specialised assertive treatment for patients with a first episode of psychotic illness). Here the relatives are at first offered Psychoeducation and then (together with the patient) Multi Family Groups where they learn to work with the relationships - even when it becomes difficult.
Finally, I want to emphasize that being involved as relatives does not equal to taking responsibility for the treatment. The carers should 'only' be involved and there must still be room for just being a family.
Søren Dixen, schizoform laywright and scholar of Nordic literature, recovery-mentor at the Mental Health Services of the Capital Region of Denmark
Since 2013, in order to promote recovery and participatory mental health, the Mental Health Services of the Capital Region of Denmark has employed recovered patients to serve as mentors to people with severe mental illness. In collaboration with his colleague, the equally schizoform artist Nikolaj Brie Petersen whose works are exhibited at the Horatio venue, Søren Dixen has come to view ‘creative praxis’ as a privileged arena, in which the engagement of both users and carers can be played out, and processes of mutual recovery can occur. Søren will tell of the various projects and platforms they have realized in community and inpatient settings and at a very low cost in order to bring about creative praxis. He will then go on to reflect upon the similarities they have found between the creative process and the recovery process, and how they understand recovery/individuation as something potentially needed by both users and carers and thus already available to them as a common ground.
Nina Kilkku, Principal Lecturer in Tampere University of Applied Sciences, Finland, Psychotherapist and President of the European Psychiatric Nurses (Horatio)
Nina has a wide experience on different research, development and education activities in the field of Mental Health Nursing in Finland and internationally. One of her latest international co-operation projects has been the EU-funded eMenthe –project in which open access eLearning materials were developed for Master’s level students, educators, service users and practitioners. In her role as a Principal lecturer she has enhanced service user and families co-operation in education and has actively participated on several local development projects of different NGOs for many years. Besides her daily work, Nina works with families and couples as a private psychotherapist. In May 2018 Nina was elected as a President of Horatio, the European Psychiatric Nurses.
Johanne Bratbo, Project Manager, Landsindsatsen EN AF OS, Denmark
EN AF OS were hosts for "The 8th International Stigma Conference: Overcomming Barriers in Minds and Society" in Copenhagen, September 2017.
Presentation title: “Overcoming structural and professional barriers for user participation in mental health”
Cooperation across sectors and increased involvement of patients, service users and their relatives has been a mantra reflecting thinking within the mental health field since the millennium.
The approach to mental illness has been expanded with increased knowledge of recovery and the particular importance of focusing on competences and lived experience of patients and service users.
This development also set the agenda for combatting stigma – both nationally and in other countries - in order to counter the increased risk of exclusion from society, reduced expectations for opportunities in life and ultimately self-stigma preventing recovery and empowerment.
This change challenges the paternalism and power structures traditionally characterising the relationship between different groups of professionals and between professionals and service users and relatives. Structural, professional and personal barriers must be overcome, and this requires a readiness to take a critical look at attitudes, knowledge, cultures, methods and language.
Anni Haase, Western Lapland psychiatry, Finland
Theme: Participatory Mental Health
The theory and practice of Open Dialogue in Tornio, Finland , has received much attention over the last decades, including research findings that point to the effectiveness and efficacy of its humanising practices within a network oriented therapeutic approach to crisis in mental healthcare (Seikkula,&Alakare&Aaltonen 2001;Seikkula,2002; Seikkula&Olson, 2003; Seikkula, Aaltonen, Alakare, Haarakangas, Keranen, Lehtinen, 2006) In Tornio the emergence and continuing development of Open Dialogue and dialogical practices was inextricably linked with the Finnish multidisciplinary teams’ training in family therapy. Thus, Open Dialogue has been an area of emerging interest in international family therapy circles.
In this presentation I aim to tell something about the history and development of Open Dialogue practices in Western Lapland during last decades and something about the work and views (as well as challenges) today. I will also include some information about the peer work we have recently started to develop in our services. Hopefully there will be a possibility to dialogue with someone who has either worked or got treatment in Open Dialogue practises or has some other links to Open Dialogue or dialogical way of working.
It will be presented mainly by a talk, some slides and maybe music might be included.
At the end of the presentation there will be room for a short discussion/reflections if wanted.
Niels Buus, Professor of Mental Health Nursing at Sydney Nursing School based at St. Vincent’s Hospital/St. Vincent’s Private Hospital, Sydney
Niels Buus he is the leader of The Centre for Family-Based Mental Health Care. He has a broad research profile within mental health and health services research, which includes suicide prevention, treatment adherence to antidepressants, clinical supervision of mental health nurses, continuity of care and recovery-oriented health care delivery models. He is a specialist utilizing ethnographic research methods in healthcare research, which can produce nuanced insights into healthcare practices and personal perspectives on health, illness and treatment. Such approaches are particularly powerful in studies of user-participation in mental health research. As a Scandinavian registered nurse, he is professionally socialized into a strong humanistic tradition emphasizing care, compassion, openness and equality in healthcare. In line with this, Prof Buus leads research teams in an examination of the effects of the resource-oriented healthcare delivery model ‘Open dialogue’ and how it could be implemented in Australian healthcare settings. In the Danish context, he was heavily engaged in developing post-registration educational programs for mental health nurses.